Who are the experts on psoriatic disease?

Get to Know Pso!

In part 1 of our Get to Know Pso Series, we ask…

Who are the Experts on Psoriatic Disease?

Living with psoriasis and psoriatic arthritis can feel like a roller coaster ride – symptoms wax and wane, finding a treatment that works is often trial and error and just when you think you have things under control, new issues may arise. Living well with psoriasis and psoriatic arthritis (psoriatic disease) involves getting to know your own body and your disease and feeling like you can handle whatever may come your way over the years.

 

We Invite You To Get to Know CPN!

The Canadian Psoriasis Network (CPN) was started to provide information, resources and hope to people who live with psoriatic disease. We’re a member-based organization led by a Board of Directors, the majority of whom live with psoriasis and psoriatic arthritis. Our membership is made up of people from across Canada who also live with these conditions and/or who care about advancing the needs of our community.

CPN knows that people who live with psoriatic disease are the experts!

That’s why we launched the Get to Know Pso campaign to learn from each other and to address common questions that members of our diverse community have. Though everyone is different, and experiences may vary even across one’s own life, hearing and learning from each other is exactly what our network is about.

Celine from Magog, QC shared:

“…For 44 years this disease has been with me. For many years it was a nightmare for me. But now I live with it and it is much better since I have come to accept it. I have received several treatments, ointments, skin biopsies over the years, with no results, even with the help of very good dermatologists. So I started to study and analyze MY psoriasis, when the crisis came, I observed what provoked it, my anxiety, my nervousness…I started to wait for these periods to pass without being aggressive towards this moment. And since then, I am in control of myself and my psoriasis while continuing the recommended ointments. Now I live well and I am happy, because I have accepted my situation and so have all my loved ones. Life is worth living.”

Fred, a member of our international community from Spring, Texas shared that sugar seems to be one of his triggers:

“I’ve had psoriasis since age 16. I’m 74…I cut back on sugar intake 2 years ago and did notice the difference. My psoriasis has been confined mostly to my scalp, facial area including ears and area of the upper chest. Now suddenly my psoriasis has almost disappeared. Especially on my face and scalp areas…It’s been a month. This is the first time in my life I’ve had hardly any symptoms. I have no idea what has happened. I wish I knew what caused it to suddenly disappear as it has…”
Everyone’s triggers are different and like Fred, it’s helpful to notice what appears to impact on your health and how you feel. Though there’s no diet that will cure psoriatic disease, there are many ways in which eating healthful food may lessen the severity of symptoms for some people and play a role in lowering the likelihood of developing comorbidities. Check out this webinar spotlighting Psoriasis and Diet for more information.

The majority of CPN’s Board members have lived with psoriasis for decades. Check out their experiences and why a network like CPN is important to them:

No matter where you are in your experience with psoriasis and psoriatic arthritis your experiences, concerns and questions matter! Over the next month, we’ll be exploring some of the many questions we received in our Get to Know Pso campaign through this blog.

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