You Are Not Alone
Living with psoriasis or psoriatic arthritis can be hard. It often helps to hear from other’s experiences so that we know we’re not alone. This section highlights stories from women just like you on living well with psoriatic diseases.
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- Learn how to be comfortable in your own skin. Don’t hide. Be informed.
- Practice being gentle and forgiving with yourself.
- It’s a daily struggle, but holding your head high and focusing on the little improvements you make really helps.
- Don’t be afraid to ask for help and do not let anyone shame you because you have a disease
- Don’t be so hard on yourself.
- Don’t hide yourself. Everyone has issues, yours just happen to be visible on your skin. If people ask questions about your skin, take the opportunity to educate them.
- Remember that you might have psoriasis which is just a part of you but it’s not all of you! It’s hard sometimes to look beyond the skin and pain but just remember you are more than just skin.
- Love yourself. Psoriasis does not define you as a person. If someone doesn’t understand it, explain it. If they don’t accept you, they are not worth it.
- It does get better with treatment and proper diagnosis.
- Find women you can trust and learn to love yourself and your body.
When asked what tips respondents of CPN’s survey of women with psoriasis and psoriatic arthritis have for other girls and women with these conditions, overwhelmingly the message of hope, positivity and self-acceptance was loud and clear.
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- Get to [a] skin specialist as soon as possible – and talk to as many people that have psoriasis on what works for them.
- Holistic approach: clinical, lifestyle, social.
- Trust yourself and self-advocate. No one else will help you but yourself.
- Keep trying every day and never give up no matter what.
- Keep pushing for a good dermatologist and/or rheumatologist. Also learn to meditate and control anxiety and stress.
- Never give up on your treatment. Reach for your goal. It’s possible to be symptom free.
- Educate yourself about psoriasis and be prepared to talk to others to educate them.
- Do not be put off by the medical profession in getting the initial diagnosis.
- It is a mistake to bear this burden alone. It is best to share. Be consistent with your treatments. Also, do not belittle your personal experience with this disease. Even a scalp patch can erode a happy day. You don’t have to be covered in psoriasis for it to be a difficult problem.
They also included messages about taking control of your condition.